Abbey Meyers (Abbey S. Meyers) founded the organization.
Congressional Record, V. 149, PT. 9, May 14, 2003 to May 21, 2003 - May 19 page 12115 available on FDSys or in print
Congressional Record Volume 153, Number 156 (Tuesday, October 16, 2007). Extensions of Remarks. Page E2152. TRIBUTE TO ABBEY MEYERS. From the Congressional Record Online through the Government Printing Office. Print on Level 6 of State Library
"3. The Food and Drug Administration’s Orphan Drug Program" Breakthrough Business Models: Drug Development for Rare and Neglected Diseases and Individualized Therapies: Workshop Summary. Institute of Medicine (US) Forum on Drug Discovery, Development, and Translation. Washington (DC): National Academies Press (US); 2009. Connect to http://www.ncbi.nlm.nih.gov/books/NBK50977
NIH Search results:
Special Emphasis Panel of the National Institutes of Health on the Coordination of Rare Diseases Research
Abbey Meyers: The "Mother" of Invention. Pharmaceutical Executive. Oct 01, 2011 By Jennifer Ringler
Printout given to patron http://www.hhs.gov/ohrp/archive/nhrpac/meyers.pdf
Forwarded Letters of Abbey Meyers - printout given to patron http://www.fda.gov/ohrms/dockets/dailys/04/july04/072204/03P-0039-emc00001-01.pdf
NORD. A beacon of hope for people with rare disorders - printout given to patron - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2994497/pdf/rt-2010-1-e13.pdf
Rare Diseases in the Age of Health 2.0. By Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon R. Ibell. p.133 has timeline that includes major accomplishments by NORD
Connecticut State Library | 231 Capitol Avenue, Hartford, CT 06106 | 860-757-6500 * Toll-free 866-886-4478
The State of Connecticut is an Affirmative Action/Equal Opportunity Employer and strongly encourages the applications of women, minorities, and persons with disabilities.