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History Day 2015

Resources for History Day

N.O.R.D.

Abbey Meyers (Abbey S. Meyers) founded the organization.

  • Orphan drug reauthorization : hearing before the Subcommittee on Health and the Environment of the Committee on Energy and Commerce, House of Representatives, One Hundred Third Congress, second session on H.R. 4160, a bill to amend the Federal Food, Drug, and Cosmetic Act, the Public Health Service Act, and the Orphan Drug Act to revise the provisions of such acts relating to orphan drugs, June 16, 1994.   StLib Federal Documents Y 4.EN 2/3:103-113   AVAILABLE
  • Orphan Drug Amendments of 1994 : report together with additional views (to accompany S. 1981).  STLib Fed Docs Y 1.1/2:Serial 14227 and StLib Fed Doc Microfiche  Y 1.1/5:103-366  also http://www.gpo.gov/fdsys/pkg/BILLS-103s1981rs/html/BILLS-103s1981rs.htm
  • Henkel, John (1999). "Orphan Drug Law Matures into Medical Mainstay". FDA Consumer.  STLib Fed Docs HE 20.4010: 
  • NORD profile on GuideStar (via Wikipedia).

Abbey S. Meyers

  • Congressional Record, V. 149, PT. 9, May 14, 2003 to May 21, 2003 - May 19 page 12115 available on FDSys or in print

  • Congressional Record Volume 153, Number 156 (Tuesday, October 16, 2007). Extensions of Remarks. Page E2152.  TRIBUTE TO ABBEY MEYERS.  From the Congressional Record Online through the Government Printing Office.  Print on Level 6 of State Library

  • "3. The Food and Drug Administration’s Orphan Drug Program" Breakthrough Business Models: Drug Development for Rare and Neglected Diseases and Individualized Therapies: Workshop Summary. Institute of Medicine (US) Forum on Drug Discovery, Development, and Translation.  Washington (DC): National Academies Press (US); 2009.  Connect to http://www.ncbi.nlm.nih.gov/books/NBK50977 

  • "WHERE TO DRAW THE BOTTOM LINE: FINANCIAL CONFLICT OF INTEREST IN CLINICAL RESEARCH." by Fran Pollner The NIH CatalystSTLib Fed Docs HE 20.3061:v/no  Permanent link

NIH Search results:

The Food and Drug Administration’s Orphan Drug Program ...

www.ncbi.nlm.nih.gov/books/NBK50974/
... a powerful political movement founded by grassroots organizer Abbey Meyers. ... The Orphan Drug Act is working well through the core activities of ...

The NIH Catalyst, September-October 2000

www.nih.gov/catalyst/2000/00.09.01/page1.html
Abbey Meyers, National Organization for Rare Disorders. The central questions posed to conference participants revolved around where to draw the line ...

NINDS Celebrates the Research Accomplishments of Roscoe Brady

nihrecord.nih.gov/newsletters/12_10_2002/story06.htm
NINDS Celebrates the Research Accomplishments of Roscoe Brady. By Shannon E. Garnett. Photos By Bill Branson. NINDS recently sponsored a scientific ...

Special Emphasis Panel of the National Institutes of ...

rarediseases.info.nih.gov/asp/html/reports/fy1999/sep.html
Abbey Meyers Executive Director The National Organization for Rare Disorders P.O. Box 8923 New Fairfield, CT 06812. Alan N. Moshell, M.D. Director, ...

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